Frequently asked questions

Enzyvant CONNECT is a program that helps children with congenital athymia and their caregivers by providing personalized support throughout the treatment journey. The Enzyvant CONNECT care team consists of a Support Liaison and an Access Specialist, who can:

• Provide you with educational resources about congenital athymia and treatment
• Determine insurance coverage and out-of-pocket costs
• Identify and put you in touch with other patient assistance resources

Enrolling in Enzyvant CONNECT will also give you access to kits mailed directly to your home containing a document organizer, storybook written specifically with your child in mind, activities for the whole family, and more! You will also receive informative newsletters and access to a webinar series.

To begin the enrollment process for Enzyvant CONNECT, you can call 844-ENZCNCT (844-369-2628) or download the enrollment form to fill out with the help of your child's healthcare provider.

Alternatively, your child's healthcare provider can download the enrollment form to enroll them in Enzyvant CONNECT. An instruction page is included with the form that explains how to complete enrollment and send it back to Enzyvant CONNECT.

Privacy is important to us. To effectively work with the healthcare provider’s office on issues such as verifying insurance benefits and other needs, Enzyvant CONNECT will need to access some of your child’s personal health information, information about you (their parent/guardian), insurance coverage, and other confidential information. Enzyvant CONNECT handles personal health information in compliance with applicable laws and regulations, including HIPAA, and only for the purposes stated on the Patient Enrollment Form.

Enzyvant does not make treatment decisions and enrollment does not have any impact on when your child will be treated. Your child’s healthcare provider and the team at Duke University Health System will determine if your child is eligible for treatment. If your child is eligible for treatment, your healthcare provider will discuss with you the timing of treatment.

The Enzyvant CONNECT care team consists of a Support Liaison and an Access Specialist, who can:

• Provide you with educational resources about congenital athymia and treatment
• Determine insurance coverage and out-of-pocket costs
• Identify and put you in touch with other patient assistance resources

Enrolling in Enzyvant CONNECT will also give you access to kits mailed directly to your home containing a document organizer, storybook written specifically with your child in mind, activities for the whole family, and more! You will also receive informative newsletters and access to a webinar series.

An Access Specialist can connect caregivers with financial assistance programs and charitable organizations that may help uninsured or underinsured patients.

No, your income has no bearing on treatment decisions. The decision for treatment is made with your treating physician and the team at Duke University Health System.